Validation of the Spanish version of the DEMQOL system


Lucas-Carrasco, R; Lamping, DL; Banerjee, S; Rejas, J; Smith, SC; Gomez-Benito, J; (2010) Validation of the Spanish version of the DEMQOL system. International psychogeriatrics / IPA, 22 (4). pp. 589-597. ISSN 1041-6102 DOI: https://doi.org/10.1017/S1041610210000207

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Abstract

Background: Dementia is associated with poor quality of life, but generic measures do not fully capture main aspects of these conditions. Our aim was to validate a Spanish version of the "dementia-specific health-related quality of life" DEMQOL system. Methods: We validated the Spanish DEMQOL and DEMQOL-Proxy in 119 people with dementia from six centers and their caregivers. Patient-reported information, including generic (WHOQOL-BREF) and dementia-specific (DEMQOL) health-related quality of life, depressive symptoms (GDS-15), functional ability (Barthel Index), subjective perception of health and demographic information, was obtained by interview. Proxy-reported information from a family caregiver about the patient's quality of life (DEMQOL-Proxy) was also obtained by interview. Results: The Spanish DEMQOL showed good psychometric properties. Acceptability (14.3% missing data), internal consistency (Cronbach's alpha = 0.85) and test-retest reliability (ICC = 0.71) were good. A priori hypotheses about the relationship between DEMQOL and the WHOQOL-BREF (psychological and physical domains), GDS-15 and Barthel Index were confirmed, indicating good construct validity. Associations between DEMQOL-Proxy and other measures were weaker. A three-factor solution accounted for 44.4% of the total variance of DEMQOL, and a four-factor solution accounted for 53.3% of the total variance of DEMQOL- Proxy. Conclusion: The Spanish versions of DEMQOL and DEMQOL-Proxy are reliable and valid in patients with mild/moderate dementia who are living at home.

Item Type: Article
Keywords: dementia, quality of life, DEMQOL, DEMQOL-Proxy, reliability, validity, QUALITY-OF-LIFE, WORLD-HEALTH-ORGANIZATION, POSITION PAPER, DEMENTIA, PEOPLE, INSTRUMENT, PATIENT, WHOQOL
Faculty and Department: Faculty of Public Health and Policy > Dept of Health Services Research and Policy
PubMed ID: 20447322
Web of Science ID: 278040700009
URI: http://researchonline.lshtm.ac.uk/id/eprint/3480

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