Development of the carer well-being and support (CWS) questionnaire

Quirk, A; Smith, S; Hamilton, S; Lamping, D; Lelliott, P; Stahl, D; Pinfold, V; Andiappan, M; (2012) Development of the carer well-being and support (CWS) questionnaire. Mental health review (Brighton, England), 17 (3). pp. 128-138. ISSN 1361-9322 DOI:

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Purpose - A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well-being and support questionnaire (CWS). Design/methodology/approach - Development and evaluation of the measure was conducted in three phases. The authors deconstructed an existing questionnaire (CUES-C) to produce a long version measure. This was trialed with carers to reduce the number of items and a preliminary evaluation of the psychometric properties of the remaining items was undertaken. A second field test was conducted with the item-reduced questionnaire measure to evaluate acceptability, reliability and validity. Findings - The CWS well-being scale shows moderate acceptability and good reliability and validity. The CWS support scale shows moderate acceptability and good reliability; validity testing for the support scale is limited by the lack of appropriate validating measures. Practical implications - The CWS is a reliable, valid measure of carer well-being and support, reflecting important aspects of carers' lives. Originality/value - This paper provides researchers and practitioners with a tool that can be used to measure and address areas of support for carers. This is important in assessing the effectiveness of new interventions and approaches. © Emerald Group Publishing Limited.

Item Type: Article
Keywords: Dementia, Mental health problems, Mental illness, Outcome measure, Psychometric evaluation, Psychometrics, Qualitative, Social care, United Kingdom
Faculty and Department: Faculty of Public Health and Policy > Dept of Health Services Research and Policy


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