Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): evaluation of acceptability, reliability, and validity


Hilari, K; Byng, S; Lamping, DL; Smith, SC; (2003) Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): evaluation of acceptability, reliability, and validity. Stroke; a journal of cerebral circulation, 34 (8). pp. 1944-50. ISSN 0039-2499 DOI: https://doi.org/10.1161/01.STR.0000081987.46660.ED

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Abstract

BACKGROUND AND PURPOSE: Health-related quality of life (HRQL) is a key outcome in stroke clinical trials. Stroke-specific HRQL scales (eg, SS-QOL, SIS) have generally been developed with samples of stroke survivors that exclude people with aphasia. We adapted the SS-QOL for use with people with aphasia to produce the Stroke and Aphasia Quality of Life Scale (SAQOL). We report results from the psychometric evaluation of the initial 53-item SAQOL and the item-reduced SAQOL-39. METHODS: We studied 95 people with long-term aphasia to evaluate the acceptability, reliability, and validity of the SAQOL and SAQOL-39 using standard psychometric methods. RESULTS: A total of 83 of 95 (87%) were able to complete the SAQOL by self-report; their results are reported here. Results supported the reliability and validity of the overall score on the 53-item SAQOL, but there was little support for hypothesized subdomains. Using factor analysis, we derived a shorter version (SAQOL-39) that identified 4 subdomains (physical, psychosocial, communication, and energy). The SAQOL-39 demonstrated good acceptability, internal consistency (Cronbach's alpha=0.74 to 0.94), test-retest reliability (intraclass correlation coefficient=0.89 to 0.98), and construct validity (corrected domain-total correlations, r=0.38 to 0.58; convergent, r=0.55 to 0.67; discriminant, r=0.02 to 0.27 validity). CONCLUSIONS: The SAQOL-39 is an acceptable, reliable, and valid measure of HRQL in people with long-term aphasia. Further testing is needed to evaluate the responsiveness of the SAQOL-39 and to investigate its usefulness in evaluative research and routine clinical practice.

Item Type: Article
Keywords: Adult, Aged, Aphasia/complications/physiopathology/*rehabilitation, Cerebrovascular Accident/complications/physiopathology/*rehabilitation, Cross-Sectional Studies, Discriminant Analysis, Female, Human, Male, Middle Age, Outcome Assessment (Health Care)/methods/*standards/statistics & numerical, data, Predictive Value of Tests, Principal Component Analysis, Psychometrics/methods, *Quality of Life, Questionnaires, Reproducibility of Results, *Sickness Impact Profile, Support, Non-U.S. Gov't, Time, Adult, Aged, Aphasia, complications, physiopathology, rehabilitation, Cerebrovascular Accident, complications, physiopathology, rehabilitation, Cross-Sectional Studies, Discriminant Analysis, Female, Human, Male, Middle Age, Outcome Assessment (Health Care), methods, standards, statistics & numerical data, Predictive Value of Tests, Principal Component Analysis, Psychometrics, methods, Quality of Life, Questionnaires, Reproducibility of Results, Sickness Impact Profile, Support, Non-U.S. Gov't, Time
Faculty and Department: Faculty of Public Health and Policy > Dept of Health Services Research and Policy
PubMed ID: 12855827
Web of Science ID: 184482100029
URI: http://researchonline.lshtm.ac.uk/id/eprint/15893

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