The Impact of COVID-19 on Autistic People in the United Kingdom

PURPOSE: The aim of this rapid research was to examine the impact of COVID-19 on autistic people (of all ages) and their families within the United Kingdom, and identify how to mitigate any adverse consequences. KEY FINDINGS: Every autistic person is different. This diversity is reflected in the range of experiences described in this report. Communication from government: Government communication regarding COVID-19 was difficult to understand and follow for many autistic people. Clear communication and transparency of decision-making from government are important and can help autistic people follow advice and guidance. Schools and education: Access to education for autistic children during lockdown was not consistent. Continued input from schools and maintaining contact with parents and families are vital if schools need to be closed in the future. Grocery shopping: Accessing groceries during lockdown was a struggle for many autistic people. Ensuring everyone has access to necessary grocery shopping, especially vulnerable groups like autistic people, must be a priority. Mental health and access to medical care: COVID-19 and its consequences affected the mental health of autistic people in a range of ways. Mental and physical health care should be accessible to all members of the population. This is particularly the case for autistic people who are more likely to have mental health problems and may find it harder to access services. Caring responsibilities and respite: Renewed support for family members and carers is needed. Many were exhausted during lockdown, especially when external support and respite care were stopped or reduced. The COVID-19 pandemic has both immediate and enduring effects. Ongoing attention to the longer-term implications for autistic people and their families is imperative; particularly in relation to educational opportunity, health, employment and social inclusion, all of which can have profound effects on quality of life.