Loucaides, Eva M; Zuurmond, Maria; Nemerimana, Mathieu; Kirk, Catherine M; Lassman, Rachel; Ndayisaba, Albert; Smythe, Tracey; Baganizi, Erick; Tann, Cally J; (2022) Livelihood support for caregivers of children with developmental disabilities: findings from a scoping review and stakeholder survey. Disability and rehabilitation, 46 (2). pp. 293-308. ISSN 0963-8288 DOI: https://doi.org/10.1080/09638288.2022.2160018
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Abstract
PURPOSE: Poverty amongst families with a child with disability adversely impacts child and family quality of life. We aimed to identify existing approaches to livelihood support for caregivers of children with developmental disabilities in low- and middle-income countries. METHODS: This mixed-method study incorporated a scoping literature review and online stakeholder survey. We utilised the World Health Organization community-based rehabilitation (CBR) matrix as a guiding framework for knowledge synthesis and descriptively analysed the included articles and survey responses. RESULTS: We included 11 peer-reviewed publications, 6 grey literature articles, and 49 survey responses from stakeholders working in 22 countries. Identified programmes reported direct and indirect strategies for livelihood support targeting multiple elements of the CBR matrix; particularly skills development, access to social protection measures, and self-employment; frequently in collaboration with specialist partners, and as one component of a wider intervention. Self-help groups were also common. No publications examined effectiveness of livelihood support approaches in mitigating poverty, with most describing observational studies at small scale. CONCLUSION: Whilst stakeholders describe a variety of direct and indirect approaches to livelihood support for caregivers of children with disabilities, there is a lack of published literature on content, process, and impact to inform future programme development and delivery.
Item Type | Article |
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Faculty and Department |
Faculty of Epidemiology and Population Health > Dept of Infectious Disease Epidemiology & International Health (2023-) Faculty of Epidemiology and Population Health > Dept of Population Health (2012- ) |
Research Centre |
The International Centre for Evidence in Disability Centre for Maternal, Reproductive and Child Health (MARCH) |
PubMed ID | 36571438 |
Elements ID | 197496 |
Official URL | http://dx.doi.org/10.1080/09638288.2022.2160018 |
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