Sivyer, Katy; Teasdale, Emma; Greenwell, Kate; Steele, Mary; Ghio, Daniela; Ridd, Matthew J; Roberts, Amanda; Chalmers, Joanne R; Lawton, Sandra; Langan, Sinead M; +8 more... Cowdell, Fiona; Le Roux, Emma; Wilczynska, Sylvia; Williams, Hywel C; Thomas, Kim S; Yardley, Lucy; Santer, Miriam; Muller, Ingrid; (2022) Supporting families managing childhood eczema: developing and optimising eczema care online using qualitative research. British Journal of General Practice, 72 (719). e378-e389. ISSN 0960-1643 DOI: https://doi.org/10.3399/BJGP.2021.0503
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Abstract
BACKGROUND: Childhood eczema is often poorly controlled owing to underuse of emollients and topical corticosteroids (TCS). Parents/carers report practical and psychosocial barriers to managing their child's eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited. AIM: To develop an online behavioural intervention to help parents/carers manage and co-manage their child's eczema. DESIGN AND SETTING: Intervention development using a theory-, evidence-, and person-based approach (PBA) with qualitative research. METHOD: A systematic review and qualitative synthesis of studies (n = 32) and interviews with parents/carers (n = 30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (n = 25) were then used to optimise the intervention to increase its acceptability and feasibility. RESULTS: Qualitative research identified that parents/carers had concerns about using emollients and TCS, incomplete knowledge and skills around managing eczema, and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that, while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included providing a rationale explaining how emollients and TCS work, demonstrating how to use treatments, and highlighting that the intervention provided new, up-to-date information. CONCLUSION: Parents/carers need support in effectively managing and co-managing their child's eczema. The key output of this research is Eczema Care Online for Families, an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.
Item Type | Article |
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Faculty and Department | Faculty of Epidemiology and Population Health > Dept of Non-Communicable Disease Epidemiology |
PubMed ID | 35577586 |
Elements ID | 179942 |
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Filename: Sivyer_etal_2022_Supporting-families-managing-childhood-eczema.pdf
Licence: Creative Commons: Attribution 4.0
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