Stigmas of congenital Zika syndrome: family perspectives.
Martha Cristina Nunes
Moreira
;
Corina Helena Figueira
Mendes
;
Marcos Antonio Ferreira do
Nascimento
;
Ana Paula Lopes de
Melo
;
Maria do Socorro Veloso de
Albuquerque
;
Hannah
Kuper
;
Márcia
Pinto
;
Loveday
Penn-Kenkana
;
Maria Elizabeth Lopes
Moreira
;
(2022)
Stigmas of congenital Zika syndrome: family perspectives.
Cadernos de saude publica, 38 (4).
e00104221-.
ISSN 0102-311X
DOI: 10.1590/0102-311X00104221
This article uses a socio-anthropological framework to explore the stigmas around interactions with children born with congenital Zika syndrome caused by the Zika virus epidemic in two Brazilian municipalities. Semi-structured interviews were conducted with parents and other relatives. We reflected on the search for meaning when having a baby with unexpected body marks, the moral suffering, the societal ableism, the burden of care, and the need for support networks. We concluded that public policies, especially social policies (health, education, and social assistance), are essential for compensatory mechanisms, recognition, and social inclusion of these children and their families.
Item Type | Article |
---|---|
Elements ID | 177203 |
Date Deposited | 23 May 2022 10:13 |
ORCID: https://orcid.org/0000-0002-7199-3797
ORCID: https://orcid.org/0000-0002-2344-3328
ORCID: https://orcid.org/0000-0002-3363-4232
ORCID: https://orcid.org/0000-0002-5572-0609
ORCID: https://orcid.org/0000-0002-1520-700X
ORCID: https://orcid.org/0000-0002-8952-0023
ORCID: https://orcid.org/0000-0001-7568-5014
ORCID: https://orcid.org/0000-0002-9758-4529
ORCID: https://orcid.org/0000-0002-2034-0294