Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research.

de Freitas, Cláudia; Amorim, Mariana; Machado, Helena; Leão Teles, Elisa; Baptista, Maria João; Renedo, Alicia; Provoost, Veerle; Silva, Susana; (2021) Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research. BMJ open, 11 (3). e044289. ISSN 2044-6055 DOI: https://doi.org/10.1136/bmjopen-2020-044289

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