Black, N; Martineau, F; Manacorda, Tommaso; (2015) Diagnostic odyssey for rare diseases: exploration of potential indicators. Policy Innovation Research Unit (PIRU). http://www.piru.ac.uk/assets/files/Rare%20diseases...
Permanent Identifier
Use this permanent URL when citing or linking to this resource.
Abstract
To explore whether an accurate, robust and cost-effective method can be developed for the routine measurement of the rare diseases diagnostic odysseys to enable the impact of interventions and policies, such as the 2013 UK Strategy for Rare Diseases, to be evaluated.
Item Type | Article |
---|---|
Faculty and Department | Faculty of Public Health and Policy > Dept of Health Services Research and Policy |
Research Centre | Centre for Evaluation |
Research Group | Policy Innovation Research Unit (PIRU), Policy Innovation Research Unit (PIRU) |
Official URL | http://www.piru.ac.uk/assets/files/Rare%20diseases... |
Related URLs |
Download
Filename: Rare diseases Final report.pdf
Licence: Creative Commons: Attribution-Noncommercial 3.0
Download