Diagnostic odyssey for rare diseases: exploration of potential indicators


Black, N; Martineau, F; Manacorda, Tommaso; (2015) Diagnostic odyssey for rare diseases: exploration of potential indicators. Policy Innovation Research Unit (PIRU).

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Abstract

To explore whether an accurate, robust and cost-effective method can be developed for the routine measurement of the rare diseases diagnostic odysseys to enable the impact of interventions and policies, such as the 2013 UK Strategy for Rare Diseases, to be evaluated.

Item Type: Article
Faculty and Department: Faculty of Public Health and Policy
Faculty of Public Health and Policy > Dept of Global Health and Development
Faculty of Public Health and Policy > Dept of Health Services Research and Policy
Research Centre: Centre for Evaluation
Research Group: Policy Innovation Research Unit (PIRU), Policy Innovation Research Unit (PIRU)
Related URLs:
URI: http://researchonline.lshtm.ac.uk/id/eprint/2391520

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